Being A Caregiver
Many caregivers struggle with the stress of balancing work, finances and caregiving.
By The Numbers
The most important thing to know about caregiving is that you do not need to do it alone. Getting support for your role as a caregiver is your first priority.
Caregiving is seldom easy. Many caregivers struggle with the stress of balancing work and caregiving responsibilities. But there are ways to manage stress and keep it from overwhelming you.
A large part of caregiver stress comes from being overloaded. There may be many competing demands on your time, and these demands may not leave much, or any, time for doing the things that you enjoy. At the same time, you may feel the emotional drain of caring for someone whose condition may not improve. If you are holding down a job and raising a family at the same time, the stress can seem overwhelming at times.
Recognize the signs of caregiver burnout
Some caregivers are reluctant to acknowledge the strain associated with their role, seeing this as an admission of failure. But acknowledging and recognizing stress is the first step toward reducing it. This acknowledgment is important, not just for the caregiver, but for everyone around him or her — the disabled relative,
• sleeping and eating problems
• susceptibility to illness
• irritability or impatience
• withdrawal from friends and family
Knowing when to ask for help is a crucial skill that helps caregivers keep going. It may appear easier to do the work yourself, but you risk quickly burning yourself out. To avoid this, you may need to tap into the human resources in your family and in your community.
Get help from other family members
Often the bulk of caregiving duties falls on the shoulders of one or two family members. It need not be this way. Here are some tips for getting other family members more involved:
Hold family meetings.
It is important to keep all family members informed on a regular basis about the care being provided, even relatives who have expressed little interest. These meetings can take place in person, on the phone or by email. You can even set up your own private electronic mailing list through services such as Yahoo Groups (groups.yahoo.com).
Be specific in your requests for help.
Make a list of all the things that need to be done and ask family members to take responsibility — at least on an occasional basis — for certain tasks, such as picking up a prescription or doing laundry.
Do not let long-distance family members off the hook.
They can pitch in by doing jobs such as paying bills, recordkeeping or managing legal and financial matters.
Show your appreciation.
You might do this through a note or a phone call. Such recognition will encourage family members to help out again.
Just because friends or neighbors have not volunteered already does not mean they do not want to help. Make a list of all the people you know who may be able to lend a hand. Ask them for help with specific tasks on the basis of their strengths. Even teenagers may be able to assist with errands or chores.
One of the most stress-inducing byproducts of caregiving is a feeling of isolation. Here are some strategies for reducing it:
Find someone you trust with whom you can share your emotions.
All feelings are legitimate, even the upsetting ones of anger,
A family or individual counseling professional can help you cope with the complex and powerful emotions that caregiving evokes. A counselor or therapist can also help you find ways to balance your competing personal, work and family demands.
Find a support group or start one of your own.
Joining a group whose members are struggling with issues similar to yours will reinforce the fact that you are not alone, and it will allow you to benefit from valuable resources and insights.
Caregiving and work
Caregiving responsibilities can rarely be restricted to lunch hours. On average, 20 hours per week are spent on caregiving-related duties. Some caregivers try to conceal their caretaking role until it begins to affect their job performance or puts their employment in jeopardy. But there are ways to prevent this from happening:
• Inform your supervisors and coworkers of your caregiving duties.
• Investigate whether you can come in on an alternative schedule or work at home.
• Check whether your employer’s benefits (such as a Dependent Care Assistance Plan) can help pay for
• Explore the possibility of taking a family leave for emergencies.
You deserve a break
For your own mental health, carve out time for yourself away from your caregiving role. Go to a movie, read a book or have lunch with a friend. Taking extended time off may require a respite care service.
In addition to family and friends, there are three main kinds of respite care:
Home care services — Workers come to your home to help with everything from cooking to bathing.
Adult daycare — The person being cared for takes part in supervised activities with other older adults.
A temporary stay in a long-term care facility — Many nursing homes offer short-term stays to provide caregivers with some time off.
Safeguard your own health
Stress can contribute to a variety of afflictions, and many caregivers run the risk of getting sick because they neglect their own health problems. Make sure you pay attention to your own needs.
• Eat properly.
• Get your needed hours of sleep.
• Exercise regularly.
• Practice relaxation techniques such as meditation.
• Set aside time for things you enjoy. In short, to provide good care, take care of yourself.
National Alliance for Caregiving
National Caregiving Foundation
European Association for Directors and Providers
of Long-Term Care Services for the Elderly
Home Instead Senior Care
1 Source: AARP.org, 2015.
3 Source: Pew Research Center: Caregivers Are Wired for Health,” June 2013.
4 Source: United Nations, Department of Economic and Social Affairs, Population Division (2013). World Population Ageing 2013. ST/ESA/ SER.A/348.